Staying Legal

I'm a homeless blogger and former homemaker. My BLOGGING is perfectly fine legally. There's nothing illegal about me running my big fat mouth on the internet. 

Adult individuals with a medical condition are legally free to do anything they like to themselves because they read something somewhere. Parents of minor children with medical conditions are not similarly free to do anything they want to their child. 

Medical professionals are also not and need to verify my claims and support their use of my information in a legally defensible fashion. You should look for studies or ask around, but get verification from a licensed medical professional or find a published paper supporting the claim. 

Some of what I talk about is not viewed as medical care per se. If I say "I believe Zithromax should be effective." that's a prescription drug and clearly medical care. If I were to say "Comfortable, stretchy clothes should help." and you think that makes sense, you should be legally in the clear to take a kid clothes shopping without running it past a physician or finding a medical study supporting that claim.

Ideally, you should read this entire website and all of atypicalcysticfibrosis.blogspot.com and start a journal while doing that and other than tracking stuff, do nothing until you have a better understanding of this approach.

If you are DIYing it, Skeptics tells you where to start safely. Changes to diet etc after keeping a journal are generally not viewed as medical treatment and if you follow the process I lay out, you should be safe.

Read, read, read and if you don't understand it, don't do it. Keep reading. 

See also Caveat Emptor on this site and the FAQ on my other health site.

If you find a physician with clinical experience who can verify that X works in a clinical setting or find pertinent studies, you are on solid ground legally and won't lose your medical license over this or lose custody of your kid.

Do note that some things I say are usable by a physician without verification. For example, on my other site I say OCD is due to mold exposure. If you have a patient with OCD and take a medical history and find mold exposure, treating for mold with known mold exposure will not endanger your medical license even if it fails to fix the OCD. So put your brain in gear, but make sure if it requires verification, you get verification

Plus some things I say are sufficient to start a study of your own. See also How would you check my hypothesis?

A study that likely requires zero gatekeeping: If you prescribe HRT, track how many of your patients see their fingernails go to hell and order testing for trypanasoma to check if that's the issue. That involves zero human medical experiments. It's merely gathering data.

If you are a parent trying to DIY a health issue in your minor child, keep written records for the health journal and stick to non-medical care like dietary tweaks or discuss it with a physician, convince them it's reasonable and supported and get a prescription. 

Basically, if it goes well, you're probably fine. You most likely only need to defend it in court if things go sideways.

But I twice was threatened with having a social worker called on me because my oldest child has issues.

Once, the school threatened me because my very obviously aspie child had improved enough that his new teacher thought my kid was normal and I was some psych job helicopter mom. The teacher apologized months later after getting to know my kid better and realizing my kid isn't quite like the other kids.

Another time, my son gained twenty pounds because of medical intervention for his newly diagnosed medical condition, and then lost five pounds. I wasn't worried. My kid wasn't worried. His speciality care clinic was threatening to call child protective services because he lost five pounds.

We got his weight up 2.5 pounds by putting a bowl of junk food on the coffee table, they got off our backs. We got home and he handed me the bowl and he said "We are NEVER doing this again! I feel AWFUL!"

Yes, "junk food diet" is routinely prescribed for his condition by medical professionals because it fits the high salt, high fat, high calorie parameters of the recommended diet and it's cheap and his condition is insanely expensive. I'm the crazy lady for feeding him healthier.

He still lives with me. He's in his thirties. I no longer have to worry about authorities calling child protective services on me for doing a better job than professionals of various spiffy titles.

But I am firsthand familiar with raising a child with a condition where doctors and other professionals don't have adequate answers and if you try something else, they may freak out and this may have legal consequences.

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